Why is it important to establish a registry for complicated conditions such as MIS-C and a diagnostic and therapeutic algorithm during a pandemic
Keywords:
MIS-C, multisystem inflammatory syndrome in children, SARS-CoV-2, COVID-19, risk stratification, biomarkers, registry, pediatric patientsAbstract
Multisystem inflammatory syndrome in children (MIS-C), associated with SARS-CoV-2, represents a serious complication requiring a multidisciplinary approach. Dur-ing the COVID-19 pandemic, the idea of establishing a national registry and develop-ing an algorithm for stratifying patients at risk of developing MIS-C was proposed. However, due to limitations in the national information system and the lack of struc-tured data, such a registry was not implemented. In contrast, the development of an algorithm allows for early assessment of disease severity. Data from both national and international studies on MIS-C highlight the need for national registries and integrated healthcare systems to improve the diagnosis and management of rare conditions.
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